The Tuberous Sclerosis Alliance is dedicated to finding a
cure for tuberous sclerosis complex (TSC) while improving the lives of those
affected.
Tuberous sclerosis complex (TSC) is a genetic disorder
that causes non-malignant tumors to form in many different organs, primarily in
the brain, eyes, heart, kidney, skin and lungs. The aspects of TSC that most
strongly impact quality of life are generally associated with the brain:
seizures, developmental delay, intellectual disability and autism. However, many
people with TSC are living independent, healthy lives and enjoying
challenging professions such as doctors, lawyers, educators and
researchers. The incidence and severity of the various aspects of TSC can
vary widely between individuals—even between identical twins.
The Objective:
Explain tuberous sclerosis complex in Spanish, using a
Spanish-speaking authority on the subject.
Complete the video in HD as well as in formatting appropriate for the
web.
Directives:
Use the Director of Pediatric Neurology at Texas Scottish
Rite Hospital for Children, Mauricio Delgado, M.D., as the on-camera authority.
Write the script outline for
translation. Shoot video, as needed, to illustrate
the patient, family and clinical components of the video.
Production Notes:
Dr. Delgado enabled original video of patients, families
and clinical procedures at Texas Scottish Rite Hospital. The hospital also allowed us to tape
narration sequences in their public area.
The Media Department of Texas Scottish Rite Hospital for
Children shared video and still resources.
The TS Alliance shared images of local TS Alliance
Support Groups
A well-known Spanish-speaking actor, Alberto Mayagoitia, contributed
his time for the on-camera narration of the video.
The video has been available on the TS Alliance web site
since completion.
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